Beyond the Hospital: Family Caregivers’ Experiences in Supporting Stroke Recovery in Ghana

The study explored the experiences of family caregivers who support stroke survivors receiving care at Suntreso Government Hospital in Ghana. It was motivated by the limited availability of formal post-stroke rehabilitation and long-term care services in Ghana, which places considerable responsibility on family members.

A qualitative research design was used. Fifteen family caregivers were selected purposively and interviewed through in-depth, semi-structured interviews. The data were analysed thematically.

The findings showed that caregivers had some understanding of stroke risk factors, especially hypertension and diabetes. However, many regarded the onset of stroke as sudden and unexpected. Their caregiving duties included feeding, bathing, assisting with movement and managing medication. These responsibilities disrupted their employment, social relationships, finances and everyday lives. Some caregivers reduced their working hours or stopped working entirely, resulting in serious financial difficulties.

Caregivers also encountered stigma associated with sociocultural beliefs that linked stroke to curses or spiritual causes. Despite these difficulties, they relied on religious faith, hope for the survivor’s recovery and a strong sense of family responsibility as coping mechanisms. The study concludes that stroke care interventions should extend beyond the patient to include caregiver training, financial protection, psychosocial support and community-based rehabilitation services.